The first-ever PKD European Patients Day was held on Saturday 18 September 2021. ...

Great news for women suffering from polycystic liver disease or PLD! The Dutch Expertise Center of polycystic diseases from the University Medical Center of Groningen (the Netherlands) received a grant worth 800.000E to set up a trial into the effect of anti-estrogenic therapy on PLD in women. ...

The first European ADPKD Patient Summit, was held in Brussels on 15–16 March 2019. This unique event was designed to promote patient-centred care by providing an interactive forum for patients and experts to discuss ADPKD care, research and advocacy. ...

All patients, caregivers and health professionals are invited to join the SONG-PKD Delphi panel to help agree the core outcomes which should be included in all future ADPKD (autosomal dominant polycystic kidney disease) research. ...

PKD International and the European ADPKD Forum (EAF) launched the first ADPKD Patient Route Map at the ERA-EDTA 2018 Congress. ...

The European ADPKD Forum (EAF) has published a “Multidisciplinary position statement on autosomal dominant polycystic kidney disease (ADPKD) care”. ...

The report from the 2014 KDIGO Controversies Conference on ADPKD has been published. ...

Translating science into policy to improve ADPKD care. ...

Today marks the formation of the European ADPKD Forum (EAF). ...