All patients, caregivers and health professionals are invited to join the SONG-PKD Delphi panel to help agree the core outcomes which should be included in all future ADPKD (autosomal dominant polycystic kidney disease) research.
PKD International and the European ADPKD Forum (EAF) launched the first ADPKD Patient Route Map at the ERA-EDTA 2018 Congress.
The European ADPKD Forum (EAF) has published a “Multidisciplinary position statement on autosomal dominant polycystic kidney disease (ADPKD) care”.
Polycystic Kidney Disease PKD) affects over 12.5 million children and adults worldwide.
The report from the 2014 KDIGO Controversies Conference on ADPKD has been published.
Translating science into policy to improve ADPKD care.
Today marks the formation of the European ADPKD Forum (EAF).
Consensus recommendations were made by more than 60 globally-recognized experts.
Leading patient groups join forces on World Kidney Day in a new drive to tackle an important yet neglected genetic kidney disease.