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58th ERA-EDTA Congress
The 58th ERA-EDTA Congress will be held in Berlin and virtually from 5-8 June 2021.
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Dutch grant awarded for a multinational trial in women with polycystic liver disease (PLD)
Great news for women suffering from polycystic liver disease or PLD! The Dutch Expertise Center of polycystic diseases from the University Medical Center of Groningen (the Netherlands) received a grant worth 800.000E to set up a trial into the effect of anti-estrogenic therapy on PLD in women.
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PKD Awareness Day 2020
Today, 4 September, is international PKD Awareness Day - our opportunity to spread the word about PKD (polycystic kidney disease).
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Apply for research funding from the PKD Foundation
The PKD Foundation has launched its 2020 research grant funding round.
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First European ADPKD Patient Summit held in Brussels
The first European ADPKD Patient Summit, was held in Brussels on 15–16 March 2019. This unique event was designed to promote patient-centred care by providing an interactive forum for patients and experts to discuss ADPKD care, research and advocacy.
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SONG ADPKD
All patients, caregivers and health professionals are invited to join the SONG-PKD Delphi panel to help agree the core outcomes which should be included in all future ADPKD (autosomal dominant polycystic kidney disease) research.
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ADPKD Patient Route Map Launched
PKD International and the European ADPKD Forum (EAF) launched the first ADPKD Patient Route Map at the ERA-EDTA 2018 Congress.
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ADPKD Position Statement Published
The European ADPKD Forum (EAF) has published a “Multidisciplinary position statement on autosomal dominant polycystic kidney disease (ADPKD) care”.
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PKD Awareness Day
Polycystic Kidney Disease PKD) affects over 12.5 million children and adults worldwide.
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