We are a global alliance of patient organizations dedicated to a cure for Polycystic Kidney Disease (PKD).
PKD International
Our mission is to improve the lives of an estimated 12.5 million affected by PKD worldwide, and their families and care-givers. We will do this by uniting patients, families, scientists, and healthcare professionals committed to ending PKD.
PKD International is a non-profit, non-governmental association (NGO) based in Geneva, Switzerland.
PKD Patient Groups, individuals and clinicians, scientists and other healthcare professionals worldwide are invited to join PKD International.
SONG ADPKD
All patients, caregivers and health professionals are invited to join the SONG-PKD Delphi panel to help agree the core outcomes which should be included in all future ADPKD (autosomal dominant poly...
ADPKD Patient Route Map Launched
PKD International and the European ADPKD Forum (EAF) launched the first ADPKD Patient Route Map at the ERA-EDTA 2018 Congress.
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ADPKD Position Statement Published
The European ADPKD Forum (EAF) has published a “Multidisciplinary position statement on autosomal dominant polycystic kidney disease (ADPKD) care”.
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