ARTICYST Survey
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The ARTICYST consortium brings together leading European centres of excellence in kidney research, including Translational Nephrology at the Faculty of Medicine and University Hospital Cologne in Germany, the Department of Nephrology at University Medical Center Groningen in the Netherlands, and PKD International representing the patient voice at international level.
The project seeks to enhance prediction of clinically relevant outcomes in autosomal dominant polycystic kidney disease (ADPKD), the most common genetic kidney disease affecting over 7 million people globally. By leveraging Open Science practices, the project aims to develop comprehensive infrastructure for data integration and predictive modelling to support patient decision-making and improve therapeutic strategies.