PKD International at Patient Consensus Meeting and European Kidney Forum 2025
Written on . Posted in News and Events.
PKD International participated in the Patient Consensus Meeting in Brussels, represented by President Flavia Galletti and board member Uwe Korst. The event was hosted by CompCure, a Danish organization dedicated to research and advocacy in rare kidney diseases, bringing together leading experts, patient organizations, kidney health advocates, and policymakers to define priorities for kidney health.
Distinguished speakers included Prof. Detlef Böckenhauer, representing the International Society of Nephrology (ISN), who delivered a presentation on "Kidney Health and the International and European Public Policy Agenda." The meeting included participation from EKHA, EKPF, FEDERG, and ERKNet.
Presenting the Consensus Recommendations at the European Kidney Forum
Following this effort, PKD International participated in the 2025 European Kidney Forum, where five key recommendations from the Patient Consensus Meeting were presented at the European Parliament. Co-hosted by MEPs Tomislav Sokol, Andras Kulja MD, and Hilde Vautmans, the Forum gathered policymakers, healthcare professionals, researchers, and patient advocates.
In closing remarks, MEP Andras Kulja MD and EKHA President Prof. Em. Raymond Vanholder emphasized the silent progression of chronic kidney disease and its public health impact, the importance of early screening and detection to improve patient outcomes, and the urgent need for increased funding and multi-stakeholder collaboration.