Receiving an ADPKD diagnosis is a life-changing experience for the person affected and their entire family. The sensitivity and clarity with which the news is communicated can have a lasting impact.
Read more …Communicating an ADPKD diagnosis: putting the patient experience at the heart of care
Research advances raise new choices for people living with PKD. Explore the ideas, tensions and proposed actions that emerged when patients, clinicians and researchers met in Leuven.
Highlights for ADPKD and ARPKD communities.
Read more …TheRaCil Annual Meeting 2026: Key Insights for the PKD Community
On 4–5 September 2026, leaders and representatives from PKD International’s member organisations will come together in Leuven, Belgium, for our first PKD Global Members Meeting.
Read more …PKD International Members to Gather in Leuven for a Landmark Global Meeting
PKD International recently contributed to a high-level webinar on rare kidney diseases organised by the European Kidney Health Alliance (EKHA) and ERKNet.
Read more …Towards More Equitable and Patient-Centred ADPKD Care Across Europe
A powerful step forward led by the Fundación Mexicana para el Riñón Poliquístico A.C.
The recent ISN World Congress of Nephrology (WCN) in Yokohama Japan was a wonderful experience. I attended as a speaker and a member of the ISN Patient Liaison Advisory Group – the role that allows me to bring the patient voice into the heart of the nephrology community.
Read more …Building Bridges, One Conversation at a Time – WCN 26 Report