The ARTICYST Study
PKD International is proud to collaborate on the ARTICYST study, an innovative research initiative focused on improving the prediction of clinically relevant outcomes in autosomal dominant polycystic kidney disease (ADPKD). The most common genetic kidney disease, ADPKD affects more than 7 million people worldwide.
One of the key challenges in ADPKD is predicting how quickly kidney function will decline, particularly at a young age. This information is crucial for patients and families when making important life decisions, including career planning, family planning, and access to treatment options.
The ARTICYST project aims to address this challenge by developing advanced predictive models through the integration of diverse data sources. By leveraging Open Science practices, the study is building a comprehensive infrastructure for data sharing and analysis, with the goal of improving both individual patient decision-making and broader therapeutic strategies.
This ambitious collaboration brings together leading clinical partners and researchers across Europe, integrating new types of data to generate deeper insights into disease progression and management, ultimately contributing to more personalised and effective care for people living with ADPKD.
At PKD International, we are particularly proud to contribute to this project by actively engaging patients, ensuring that their perspectives, priorities, and real-world experiences are embedded throughout the research process.
Find out more about the ARTICYST study on the official project website
Have Your Say: European Survey on AI and Open Science in ADPKD
Are you living with ADPKD? Your voice matters.
As part of the ARTICYST project, PKD International invites patients to take part in a European research survey exploring the role of Artificial Intelligence and Open Science in kidney care. Your input will directly help guide researchers, clinicians, and policymakers across Europe.
By sharing your views, you help ensure that patients remain at the heart of future PKD research and innovation.