ADPKD Care Pathway
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Care Pathways Toolkit (JARDIN)
Designed to support healthcare professionals, project managers, and patient representatives in co-developing ERN care pathways, this toolkit proposes a model that ensures the needs and priorities of People Living With Rare Diseases (PLWRD) are embedded in the resulting pathways.
One of the initial projects will be ADPKD. The draft was discussed on June 26th. Many comments were given to produce the next version of the ADPKD care pathway.