ERN Rare-Liver
ERN RARE-LIVER is the European Reference Network for centres of excellence in the clinical management of rare liver disease in adults and children, including congenital hepatic fibrosis in ARPKD and polycystic liver disease in ADPKD.
ERN RARE-Liver aims to improve the standards of care and clinical knowledge in rare liver diseases across Europe. Working closely with the clinical centres, doctors and patients the network will: disseminate best clinical practice, use innovative IT solutions to enable clinicians to access expert knowledge across Europe, update clinical guidelines to enable standardisation of care and to provide patients with relevant high quality information.