ADPKD Registry (US)
The APDKD Registry is the the first North American database of patients with ADPKD, set up by the PKD Foundation. It is a collection of individuals with autosomal dominant polycystic kidney disease (ADPKD).
By joining the ADPKD Patient Registry, you will enable the PKD Foundation to understand more about the ADPKD patient journey, unmet medical needs, patient preferences and reveal more about the disease burden on patients' lives and their families. The Registry will also help identify patients suitable for research studies and trial.