PKD International at the 61st ERA Congress in Stockholm 23-26 May 2024

KDIGO news on ADPKD

The KDIGO Clinical Practice Guideline for the Evaluation, Management, and Treatment of Autosomal Dominant Polycystic Kidney Disease (ADPKD) represents the first KDIGO guideline on this subject. The guideline was recently made available for public review and will be published in 2024.

The guideline aims to serve as a useful resource for clinicians and patients by providing actionable recommendations with infographics based on a rigorous, formal, systematic literature review. Another aim is to propose research recommendations for areas in which there are gaps in knowledge.

The ADPKD Guideline is co-chaired by Olivier Devuyst, MD, PhD (Switzerland), and Vicente Torres, MD, PhD (United States).

Patient representatives of PKD International/ ERKNET were involved

Chapters of the guideline are:

Chapter 1: Nomenclature, Diagnosis, Prognosis, and Prevalence
Chapter 2: Kidney Manifestations
Chapter 3: CKD Management and Progression, Kidney Failure, and Kidney Replacement Therapy
Chapter 4: Therapies to Delay the Progression of Kidney Disease
Chapter 5: Polycystic Liver Disease
Chapter 6: Intracranial Aneurysms (ICA) and Other Extrarenal Manifestations
Chapter 7: Lifestyle and Psychosocial Aspects
Chapter 8: Pregnancy and Reproductive Issues
Chapter 9: Pediatric Issues
Chapter 10: Approaches to the Management of People with ADPKD