News

Highlights for ADPKD and ARPKD communities.

On 4–5 September 2026, leaders and representatives from PKD International’s member organisations will come together in Leuven, Belgium, for our first PKD Global Members Meeting.

PKD International recently contributed to a high-level webinar on rare kidney diseases organised by the European Kidney Health Alliance (EKHA) and ERKNet.

A powerful step forward led by the Fundación Mexicana para el Riñón Poliquístico A.C.

The recent ISN World Congress of Nephrology (WCN) in Yokohama Japan was a wonderful experience. I attended as a speaker and a member of the ISN Patient Liaison Advisory Group – the role that allows me to bring the patient voice into the heart of the nephrology community.

My name is Andrea. I am 43 years old and the father of three wonderful children: Giuseppe (15), Francesca (10) and Alessandro (5). Two of them, Giuseppe and Alessandro, live with a rare disease: Autosomal Recessive Polycystic Kidney Disease (ARPKD). Being a father in these circumstances means learning very early that life no longer follows the “normal” rhythm of most families. Every decision becomes intertwined with appointments, treatments, hospital stays and waiting times, and the future is measured in small but vital goals.